When you are told that you have limited time, and know that as a truth, you want to do as much as you can and see as many people as you can as possible. I have been trying to do that ever since I was given my timeline. Well now things are getting a little more real, my body is slowly slowing down and so with that means I have to slow down.
I am close to needing oxygen daily and I have a fear that I am retaining fluid in my lungs and/or my abdomen. I will most likely be going up to Huntsman tomorrow to have both of those issues addressed and we will see what happens. I am scared to go to the hospital now as I don't want to be stuck up there for silly reasons and sometimes they keep you for silly reasons. If I have fluid, then I want it drained and sent on my way. If I need oxygen, same thing. Give me a portable tank, please. I bought a pulse oximeter and my oxygen is sitting at 92 (should be high 90's) and then drops down into the 80's at rest. My heart is really working overtime though, with a resting heart rate of 106ish when it should be in the 70's. I also have been throwing up almost daily and can't really pin point what is triggering it. All of these things make all of this too real and kind of slaps me across the face. It makes me realize that I'm not in control even though I want to be. And that is what scares me.
All of that said I have had some good times this last week. We had a giant party in my honor and it was a lot of fun. I requested that everyone bring an appetizer/dessert/treat from a
Pinterest board I made. Man was the food amazing! Not one
Pinterest fail! So impressed. We had all my favorite drinks: Hennessey and Coke, Justin Timberlake's 901 Tequila, Sweet Tea Vodka, Korbel Natural Champagne and PBR. My friend had a photographer come and she got some amazing photos. Click here to see them all:
A Party for Alexis
Besides that here is a photo run down of what I've been up to:
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Just one of the amazing photos from the party, in my parents back yard |
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Shakeface! |
I made my own Snapchat filter for the party!
A picnic up the canyon with Cate
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Getting my toes wet! |
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Philipoom Family Time Monroe riding on the scooter! |
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Bunco with a special guest! |
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My man at dinner |
Canyon selfie
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My Angels being piggies! |
Market Street A Team!
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Custom cake |